Wednesday, February 27, 2008
Please Pray for Ian
I went to see Ian again late tonight. He's up to 7lb 1oz. His abdomen has always remained distended since the surgery, but the past 2 days has been a bit bigger than normal. Tonight when i went in the nurse informed me that they had stopped his feeds again because he was having some bloody discharge from his jejunostomy. I unfastened his clothes to check his abdomen to see if it was more distended and said "OMG what is wrong with his belly?!?!" His tiny pink stoma is now huge and long...What has happened is that the pressure in his abdomen has now caused the intestines to actually protrude through his stoma inside out... to the outside of his body. I immediately asked to talk to a Dr. The nurse called the Dr and he spoke with me on the phone saying it was the pressure causing it and claimed that this isn't exactly abnormal. What???? He said the surgeon is still out of town but they will call him again tomorrow and see when he may be able to get to this hospital to see him. I'm extremely concerned at this point that they are waiting too long... They waited too long last time and the damage was so severe that the surgery was extremely unsuccessful and they almost lost him. I asked that he call another surgeon and get an opinion on wether this was truly okay to hold off or if something needed to be done soon. He called back saying that the surgeon on call said to transfer him to Children's hospital, don't wait for the other surgeon. Soooo, he will be transferred back to children's first thing in the morning (mediflight team is busy and it's the soonest the other nicu can have a bed open for him). He is stable tonight, he's doing okay, i'm just so worried about this new issue. It's so hard! Why can't something work out right? I called in to work for the rest of the week and told them i'd let them know when and if i could come back within the near future. I guess it's all too soon to be working, i dunno. Everything keeps falling apart when it's finally going well. I'm very scared for him and I hope they can find out what is going on and fix it and fix him soon. This whole intestine thing with him is so scarey. It's like there's never been a "calm" for them to "recuperate" and noone knows what's going on in there until they open him back up. I just held him and cried and cried cuz i'm so scared and frustrated at the not knowing... It just feels like it's one thing after another and noone knows what's going on or what will happen. I'm okay with sending him to children's this time, that way i can say "i want to see a surgeon right now" and it will be possible, whereas at this nicu, there are no neo surgeons...they all have to come from children's to eval the babies. Please pray everything works out for us and Ian's problems can be resolved. Thank you guys for being here for me the past 3 months. Ian is 3 months old today. Please please god give me another 3 months!
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2 comments:
Oh, Christy, I'm so sorry! I WILL be praying for you all. Know that God has his hands on your precious baby. Take care!
Christy, I am praying for your family that Ian will get through this. I know it is so hard in the NICU. He is getting so big. I am sure the transfer to Childrens will help.
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